740-621-4CHF [email protected]

The Children’s Heart Foundation Ohio Chapter is committed to the children of our state. Here are some of the local children helped by the important research and advocacy efforts of our chapter and those we honor who are no longer with us, but in whose memory we work.


Kennedy

I am Kennedy
I am kind
I am a little sister
I am eager to learn
I am funny, patient and a positive thinker
I am the best daughter my parents could ask for
I am a softball, basketball and volleyball player
I am a leader, team player and morale booster
I am a lover of the color purple and all things with zebra accents
I am laid back without a care in the world
I am a survivor!
I am Kennedy

Kennedy was 2 when her CHD was detected. Her cardiologist thought it would be best for her to get into the cath lab right away to see what she was dealing with. They found she would need Open Heart Surgery. Kennedy has Tretology of Fallot which is several different defects. Her defect is made up of Pulmonary Atresia and Ventricular Septal Defect. She needed to have 2 surgeries over 2 months to repair everything. Both times she did very well with her recovery. Since 2003 she has had numerous stents and angioplasty. She has had the Cheatham-Platinum stent put in, which at the time was still being looked over by the FDA. She has gotten along great with that and most recently had a melody valve put in place in the cath lab. Valve replacement was normally only done through open heart surgeries so when it became a possibility to have this done in the cath lab we were very happy. She had the procedure done on a Tuesday and was playing softball and basketball the following Saturday. She said she hadn’t felt better. We are huge advocates of research for CHD’s. We believe Kennedy would have had at least 4 surgeries to date had the scientists and doctors not been so proficient with their studies on how to repair CHD’s less invasively. This has cut down on recoup time for her allowing her to be a very active and happy child.


Adam

I am Adam
I am a brother, son, and senior in high school
I am a fighter
I am a golfer, a fisherman, and I love the outdoors
I have severe Pulmonary Stenosis and a repaired VSD
I am Adam

Adam was born on Jan 12, 1995 a very sick baby.  The Doctors told us that Adam would probably die, and he was transferred to Nationwide Children’s within hours.  At Children’s Adam was able to hold off surgery after a balloon cath opened up his Pulmonary Valve.  After 10 days in the NICU he got better.  Then, at 2 months, Adam could not breathe, and was rushed to the emergency room, and a Cricoid Split was performed on his trachea.  After 21 days on life support, Adam recovered for his first open heart surgery at 4 months old, and then his second at 14 months old.  Adam had numerous Caths as well, and is now doing great as a high school student.  Adam will need one more surgery for his Pulmonary valve.


Johnny

I am Johnny
I am a little brother
I am a brunette with deep brown eyes
I am soothed by my mommy’s singing, “Twinkle, Twinkle Little Star”
I am an inspiration
I am The Little Heart That Could, though my body couldn’t
I am Johnny

Johnny was diagnosed with heterotaxy at 20 weeks gestation. He was born full term with several complex heart defects. After three heart surgeries, one heart cath and three months Johnny passed away in his parent’s arms. Today, because Johnny inspired change, his family advocates and fund-raises for CHD’s in his memory.


Cameron

I am Cameron
I am a son and a big brother
I love fire trucks, trains and playing outside
I am a warrior
I am Cameron

Cameron was diagnosed with a Coarctation of the Aorta and a Bicuspid Aortic Valve at two weeks old. Thanks to Nationwide Children’s Hospital, Cameron underwent corrective surgery and is now a happy, healthy four year old.

 


Emily

I am Emily
I am a sister
I am a daughter
I am a friend
I am a fighter
I am CHD Warrior Angel
I am Emily RoseMarie

It’s a beautiful day up in Heaven. Jesus is rounding up his tiniest angels to go live on earth and be born. One of the sweetest angels says to Jesus “I don’t want to leave, I like it here and I will miss you”… He reassures the scared little angel that everything will be okay and that she is just going for a visit. She is not swayed on this idea, so Jesus kneels down and says, “How about if you leave half your heart here with me and take the other half with you, will that be okay?” The angel smiles and says “I guess that wil work”. Bit the little angel is still a little scared. ‘Will I be okay with only half of my heart”? Jesus replies “Of course you will, I have other angels there that will help you out, and you will be fine”. Then Jesus gives the angel more details about his plan. He says “When you are born your mommy and daddy will be scared, so you have to be strong, and when you feel weak just remember that I have the other half of your heart. Enjoy your time with your family, play and laugh everyday and when it’s time to come back to Heaven, I will make your heart whole again.” Always remember that you are not broken, just torn between two loves”. By Savana Williams…


Hope

I am Hope
I am a dreamer
I am a dancer
I am a lover of animals (except bugs)
I am a pink wearing girly girl princess
I am 1 in 100
I am a miracle
I am Hope

Hope is 2 ½ years old and living a full and happy life with her half a heart.  Hope was born with Hypoplastic Left Heart Syndrome.  Hope is thriving today because research continues for the rarest forms of congenital heart defects.  With continued funding for research, Hope will continue growing and live a life that would not have been possible 40 years ago.

 


Amara

Amara was diagnosed with Pulmonary Atresia with IVS and other cardiovascular issues at birth. At one day old, doctors performed a life saving balloon technique to open her value. Amara spent nine days in the cardiac ICU before being released from the hospital. She is now ten months old and taking one day at a time!

Contact Our Chapter

9550 Yankeetown Chenoweth Rd Mt. Sterling, Ohio 43143 [email protected] 740-621-4CHF